CoMPaSS-NMD Young Investigation Training initiative

CoMPaSS-NMD Young Investigation Training Series

The CoMPaSS-NMD (Computational Models for new Patient Stratification Strategies of Neuro Muscular Disorders) project aims to develop computational approaches that foster advanced patient stratification procedures necessary for diagnosis and trial preparation.

The Young Investigator Training (YIT) initiative was created within the CoMPaSS-NMD framework with education and training purposes contributing to the scientific exchange between young researchers. The idea behind the program is to guarantee high-quality clinical assessments conducted by qualified clinicians. Secondly, it seeks to attract and unite young researchers in NMD field. By training them in a novel, multimodal, and multidisciplinary approach (encompassing clinical practice, bioinformatics, imaging, histology, genetics, data mining, and dissemination), we can equip them to address the needs of a new generation of NMD patients.

The YIT webinar series will equip you with the latest techniques to dramatically improve your efficiency in patient clinical evaluation and data collection. Stay ahead of the curve in NMD research and empower yourself to deliver exceptional care.

A certificate of succesful participation will be released upon conclusion of the tutorial session demonstrating a complete eCRF examination on a healthy control. The certificate will grant trainees the priority to attend the Autumn School organised within the YIT framework.

The CoMPaSS-NMD (Computational Models for new Patient Stratification Strategies of Neuro Muscular Disorders) project aims to develop computational approaches that foster advanced patient stratification procedures necessary for diagnosis and trial preparation.

The Young Investigator Training (YIT) initiative was created within the CoMPaSS-NMD framework with education and training purposes contributing to the scientific exchange between young researchers. The idea behind the program is to guarantee high-quality clinical assessments conducted by qualified clinicians. Secondly, it seeks to attract and unite young researchers in NMD field. By training them in a novel, multimodal, and multidisciplinary approach (encompassing clinical practice, bioinformatics, imaging, histology, genetics, data mining, and dissemination), we can equip them to address the needs of a new generation of NMD patients.

The YIT webinar series will equip you with the latest techniques to dramatically improve your efficiency in patient clinical evaluation and data collection. Stay ahead of the curve in NMD research and empower yourself to deliver exceptional care.

A certificate of succesful participation will be released upon conclusion of the tutorial session demonstrating a complete eCRF examination on a healthy control. The certificate will grant trainees the priority to attend the Autumn School organised within the YIT framework.

What is on the agenda?

The YIT series is offering a program of webinars scheduled between July 2024 and April 2026.

The YIT series kicks off with a two-part webinar on using the electronic Structured Case Report Form (eSCRF) developed in CoMPaSS-NMD and the related phenotype ontology. The training session will provide users with a valuable opportunity to benchmark their professional skills against consensus assessments. Additionally, they will gain access to a comprehensive video library showcasing clinical manifestations, all seamlessly integrated within the electronic structured form.

In 2025, the YIT series will continue with a spring webinar focused on utilising the electronic Genetic CRF. Summer will bring another installment, this time delving into the electronic Histological Case Report Form.

To round out the year, we will be offering a fall webinar on the electronic Magnetic Resonance Imaging CRF.

The YIT series culminates in Spring 2026 with a final webinar unveiling the CoMPaSS-NMD ATLAS. This session will equip students with the knowledge of how to use the ATLAS and explore the benefits it brings to their research endeavors.

The main webinars will be preceded by an introductory session designed to get you up to speed on the project and its core objectives.

In these sessions, we will cover:

An introduction to the CoMPass-NMD project and its training program
How the program addresses unmet knowledge gaps related to clinical phenotypes and multicenter data aggregation
How the program ensures compliance with current data protection legislation

By attending this introductory session, participants will gain a solid foundation for the webinar series and be well-prepared to delve deeper into the topics covered.

The YIT series is offering a program of webinars scheduled between July 2024 and April 2026.

The YIT series kicks off with a two-part webinar on using the electronic Structured Case Report Form (eSCRF) developed in CoMPaSS-NMD and the related phenotype ontology. The training session will provide users with a valuable opportunity to benchmark their professional skills against consensus assessments. Additionally, they will gain access to a comprehensive video library showcasing clinical manifestations, all seamlessly integrated within the electronic structured form.

In 2025, the YIT series will continue with a spring webinar focused on utilising the electronic Genetic CRF. Summer will bring another installment, this time delving into the electronic Histological Case Report Form.

To round out the year, we will be offering a fall webinar on the electronic Magnetic Resonance Imaging CRF.

The YIT series culminates in Spring 2026 with a final webinar unveiling the CoMPaSS-NMD ATLAS. This session will equip students with the knowledge of how to use the ATLAS and explore the benefits it brings to their research endeavors.

The main webinars will be preceded by an introductory session designed to get you up to speed on the project and its core objectives.

In these sessions, we will cover:

An introduction to the CoMPass-NMD project and its training program
How the program addresses unmet knowledge gaps related to clinical phenotypes and multicenter data aggregation
How the program ensures compliance with current data protection legislation

By attending this introductory session, participants will gain a solid foundation for the webinar series and be well-prepared to delve deeper into the topics covered.

Objectives

To train a new class of clinical investigators in NMDs
To disseminate standardised methodologies in EU on NMDs
To create a framework for scientific exchange among young researchers

To train a new class of clinical investigators in NMDs
To disseminate standardised methodologies in EU on NMDs
To create a framework for scientific exchange among young researchers

The YIT initiative at a glance

YIT Introductory part – CoMPass-NMD: filling the gaps in inherited muscle disorders (25 June 2024)
YIT 1 – Electronic Structured Clinical Report Form (eSCRF) –
- Part 1 (15 July 2024)
- Part 2 (last week of August 2024)
YIT 2 – Electronic Genetic data Clinical Report Form (eGCRF) (Spring 2025)
YIT 3 – Electronic Histological data Clinical Report Form (eHCRF) (Summer 2025)
YIT 4 – Electronic Magnetic Resonance Imaging data Clinical Report Form (eMRICRF) (Autumn 2025)
YIT 5– The CoMPaSS-NMD ATLAS (Spring 2026)

Webinars in 2024

Introductory part

CoMPass-NMD: filling the gaps in inherited muscle disorders

Who is this course for?  Clinical fellows and residents with interest in NMDs

Agenda:

Organisers: Fondazione Stella Maris, Università di Modena e Reggio Emilia

Contact email: comm@compass-nmd.eu

Language: English

The trainers

Learning material

Download the slides of the YIT Introductory webinar

YIT 1 – Part 1

Electronic Structured Clinical Report Form (eSCRF)

Who is this course for?  Clinical fellows and residents with interest in NMDs

Agenda:

Organisers: Fondazione Stella Maris, Università di Modena e Reggio Emilia, University of Newcastle, Folkhälsan, Ludwig-Maximilians-Universität München.

Contact: comm@compass-nmd.eu

Language: English

YIT 1 – Part 2

Electronic Structured Clinical Report Form (eSCRF)